The Big Game
Okay it’s my turn, Holly here.
Maceo is now twelve weeks old and so beautiful that it takes my breath away. I’m not totally sure if he’s ever gonna grab my hand and call me mom and that takes my breath away as well. We still don’t know why or how he was injured and I guess it doesn’t matter. What matters is that life is totally different than it was before he came around.
On one hand life is scary and full of mysteries with the prognosis we were given from neurologists ranging from “normal to devastating.” One doctor said that he may “just grow out of the stiffness and shakiness”. Another doctor said that it is “highly likely” that he will have cerebral palsy. One nurse said “he’s gonna be fine, he’s very alert and responsive and doesn’t have a neurological cry.” Another doctor said, “he may not learn to suck and swallow.” Another said that his injury may just heal and then his suck/swallow “reflexes could just turn on one day”. When I line up all these communications, I have to reduce them all down to the simple fact that there’s no way to know exactly what is going to happen. The bottom line is that it will be up to him.
Above all this I feel like I am finally in my life playing a game worth playing. Every little victory blows away my feelings of sadness and confusion. His suck/swallow business is getting stronger and stronger and he’s starting to coo and gurgle. Joe and I are learning how to make him happy and chill him out. The little kid of ours needs and wants our help to get his body going. Being a singer and a songwriter has been a pretty good life’s work but pales in comparison to what’s happening now.
Anyhow the three of us have all decided: we are going to win the big game. There’s no other way to play it.
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Our little friend Maceo is just too cute. That precious little face makes me smile every time I get a new photo. Team Maceo extends much further than you even know. My husband and I share in your joys, and your trials, as Maceo and Erik share a birthday.
Thanks so much for starting this website, as I hate to bug Jeannette for new photos and info on this baby doll. Please take care of yourselves and know that we’re all cheering for you in this Big Game.
Comment by Diana in TX — October 18, 2009 comment link
What amazing and wonderful parents Maceo is blessed with. My heart fills with pride each time I see a new photo of the beautiful McKay family. Holly and Joe, your inner strength and positive outlook are indeed an inspiration. I look forward to visiting soon and holding my precious little grandson. He reminds me daily of what is really important in life.
Comment by Grandma Nettie — October 18, 2009 comment link
Darling Holly, These pictures and your words — and Joe’s — make me feel like I am there with you. Your boy is spectacularly gorgeous. My heart and love are with you. If you come back East to Philly, we will definitely make a road trip (if you want us to) to see you (and the Liberty Bell!).
My deepest love,
Loren.x
Comment by Loren — October 18, 2009 comment link
What a stunning baby boy he is! Thank you for creating a place for us to follow his incredible journey!! A child is such an amazing gift. I hope to meet Maceo someday! I would love to give you all a hug and will do whatever I can out here to help and send love your way! I say if the three of you are playing, then the Big Game is won already!
Big Love!!
Keli Daniels Landry and Family!!!
Comment by Keli — October 18, 2009 comment link
Holly,
Congratulations for beeing a mum and Maceo welcome to the family! I looked at all your photos and they are touching. Maceos`second cousin Kiira ( age 13) said that Maceo is adorable. I wish you all strength and many little victorys. Kati
Comment by Kati — October 18, 2009 comment link
He has the two best coaches ever. He keeps winning every game he plays. I love you guys!!
Comment by Denice — October 18, 2009 comment link